Experience in Quality of Life Management Among End-Stage Liver Cancer Patients With Caregivers and Health Personnels at University Hospital

Abstract

This article aimed to study 1) the necessity related to the quality of life of patients with terminal liver cancer and 2) the experience of managing the quality of life of patients with terminal liver cancer in the university hospital. The design of this research was qualitative. The study model was a phenomenological study area, which was a university hospital. Data were collected through in-depth interviews and participant observation to verify the validity of the data. There were 3 groups of informants: 1) 10 caregivers; 2) 10 patients with terminal liver cancer; and 3) 5 medical personnel using purposive sampling. The research tool was a semi-structured interview (semi-structured) by analyzing the content and writing a descriptive narrative.

The research results were found as follows: 1. Quality of life of patients with terminal liver cancer Caregiver's perspective on life experiences Patients and medical personnel. The definition of quality of life for patients with terminal liver cancer is the same as the quality of life of terminally ill cancer patients: living while sick. face the symptoms of the disease Coping with stress and despair with relatives as caregivers and medical personnel to give advice on palliative treatment and finding the effect caused by illness with liver cancer in the last stage affecting the quality of life during illness in all four aspects, namely physical effects Emotional and psychological effects social impact and spiritual impact; 2. There are various management styles. Medicated symptom management, in large hospitals, especially university hospitals, is managed where morphine is administered. The caregiver manages the symptoms non-drug by playing instrumental music. Patients received stress management and primary social support from their caregivers. A secondary study from a multidisciplinary personnel team found that medical personnel managed bad news communication to patients and caregivers and end-of-life management. to give patients Seeing death as happiness.