A study of family-based care for people with severe disabilities in Samae Dam Subdistrict Bang Khun Thian District Bangkok

Abstract

The objective of this research is to study the caring situation, and guidelines, and create a model for caring for disabled people with severe disability. The data were collected through in-depth interviews with 6 disabled people and 6 family caregivers of disabled people in the Samae Dam subdistrict, Bang Khun Thian district, Bangkok, and 6 disabled academicians, disabled experts from government agencies and 6 experts on disabled people working in the private sector or civil society sector. The collected data were analyzed by conducting typological analysis followed by interpretation and analytic production. The result of this study shows that disabled people within the guidelines for taking care of severely disabled people require holistic care in 5 areas as follows: 1) Physical aspect, 2) Emotional aspect, 3) Spilite aspect, 4) Social aspect and, 5) Welfare rights. (1) Knowledge is daily routine caring including food, medicine, physical therapy, and communication. (2) Required accessories for disabled people are adult diapers, a wheelchair, a cane for disabled people, suction, and first aid kits. (3) Helper including personal assistant, public health volunteer, foster family, foster home, etc. (4) Money including disability allowance, loans, and tax deductions, etc. (5) Social Group, namely, nature groups, clubs, associations, and foundations, etc. (6) Community including people in the community attitude, assistance in carrying and moving, employment, and monitoring and warning. The suggestion and recommendation in this study are to implement a prototype (model) studying caring disability people with severe disability through family prototypes in other provinces in Thailand or countries in the Asia region which have similar economic, and lifestyle models as Bangkok City.